Patient Care

Projects

Child Health (Archived)

Below is a list of the current projects this work group is sponsoring. Visit the searchable project database to find projects sponsored by other work groups.

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Num	Name	Sponsor(s)/ Co-Sponsor(s)	Description	Project Facilitator	SD Approval Date	TSC Approval Date	Status
1,429	FHIR Implementation Guide for Data Exchange for Quality Measures (Da Vinci Pjt)	Sponsor(s): Clinical Quality Information Work Group Co-Sponsor(s): Clinical Decision Support Work Group,Patient Care Work Group	- Payers and providers need common exchange process to share the data required to complete quality measures as well as gaps in care. - The initial focus of this PSS was both the standard for exchange and the specific use case of medication reconcilia. . .	Bryn Rhodes, Gay Dolin, Robert Dieterle, Linda Michaelsen, Viet Nguyen	Mar 2, 2020	Jan 30, 2026	STU - Reconcile
1,977	Da Vinci Data Exchange for Quality Measures DEQM Universal Realm (PSS- 2691)	Sponsor(s): Clinical Quality Information Work Group Co-Sponsor(s): Clinical Decision Support Work Group,Patient Care Work Group	Note that this is a new JIRA PSS to the existing project, PI ID 1429. The purpose of this change is to create a Universal Realm successor to the DEQM STU 5 IG already published in the US Realm. DEQM STU 5. 0. 0 is published in the US Realm, and th. . .	Bryn Rhodes	Awaiting Approval	Jan 30, 2026	Active Project (Resources assigned to pjt)
1,805	Adverse Event Clinical Research Implementation Guide (Jira PSS - 2171)	Sponsor(s): Biomedical Research and Regulation Work Group Co-Sponsor(s): Devices Work Group; Patient Care Work Group	Adverse events (AE) are tracked and evaluated as part of the clinical research process in a research study, as the occurrence of an adverse event may surface a potential confounder or a potential side- effect of the study treatment. In the research setting. . .	Michelle Casagni	Awaiting Approval	Apr 24, 2023	STU - Test Period/Accepting Comments
1,423	Bidirectional Services e Referrals (BSe R)	Sponsor(s): Public Health Work Group Co-Sponsor(s): Patient Care Work Group	Bidirectional Services e Referrals involve the exchange of information between clinical care Electronic Health Records (EHRs) and service systems or EHRs that reside in services, lifestyle change, and public health organizations. They also involve the retu. . .	John W. Loonsk MD, CGI Federal and Consultant to CDC	May 23, 2018	Jul 9, 2018	STU - Test Period/Accepting Comments
1,111	Essential Information for Children with Special Health Care Needs	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Emergency Care Work Group; Patient Care Work Group	Children commonly have specific needs requiring multidisciplinary care and communication. We aim to develop required templates and implementation guide for an electronic format (e. g. , CDA) that includes important information about patient (and, when appro. . .	Russell Leftwich, Michael Padula, Pele Yu	Jun 18, 2014	Jun 27, 2014	Active Project (Resources assigned to pjt)
1,342	Clinical Decision Support (CDS) for Immunizations FHIR Implementation Guide	Sponsor(s): Public Health Work Group Co-Sponsor(s): Clinical Decision Support Work Group; Patient Care Work Group	Clinical Decision Support for Immunizations is increasingly being used in health information systems to indicate which vaccinations a patient is due for next. Many of these expert systems are built as stand- alone systems that respond to web service reques. . .	Nathan Bunker	Nov 3, 2017	Dec 21, 2017	STU - Test Period/Accepting Comments
1,886	Universal Implementation Guide for Family Health History (Jira PSS- 2389)	Sponsor(s): Clinical Genomics Work Group Co-Sponsor(s): Patient Care Work Group	Creating a new IG that updates and expands current FHIR profiles and resources for family health history. This product will support both the transition from older non- HL7 standards currently in use, and also compatible with existing FHIR core profiles of . . .	Grant Wood	Awaiting Approval	Awaiting Approval	Active Project (Resources assigned to pjt)
1,620	COVID 19 FHIR IG (PSS in Confluence)	Sponsor(s): Clinical Information Modeling Initiative Work Group Co-Sponsor(s): Clinical Quality Information Work Group; Orders and Observations Work Group; Patient Care Work Group; Public Health Work Group	Develop or reference FHIR profiles for COVID 19 data that requires exchange using standards. This will be a library of reusable profiles that can be used for multiple use cases including case reporting, surveillance, orders, analytics, research, etc. I. . .	Stan Huff	Aug 7, 2020	Nov 23, 2020	Informative - Request Publication
1,570	Data Elements for Emergency Department Systems Update and Revision (updated PSS on Confluence)	Sponsor(s): Emergency Care Work Group Co-Sponsor(s): Patient Care Work Group	Development and publication of specifications for ED patient records systems, Data Elements for Emergency Department Systems (DEEDS) (http://www. cdc. gov/ncipc/pub- res/deedspage. htm) in 1997, showed that relevant data standards can be consolidated and dist. . .	James Mc Clay	Awaiting Approval	Awaiting Approval	Active Project (Resources assigned to pjt)
1,746	CHOICE Guideline for the use of a Fetal Resource (Jira PSS- 1946)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Public Health Work Group	Goal of the project is provide guidance in handling data relevant to the foetus in order to facilitate making those data available at the time of birth. Ultrasonographic and other imaging findings, pertinent genetic and labor. A foetus starts as a body ti. . .	Michael Tan	Awaiting Approval	Jun 6, 2022	Informative - Reconcile
1,618	Multiple Chronic Conditions (MCC) Dynamic Electronic Care Planning and Management FHIR IG (PSS in Confluence)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Clinical Decision Support Work Group	Initiated by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), the multiple chronic conditions (MCC) Dynamic electronic care (e Care) Plan Project aims to develop, test, and pilot an interoperable e Care plan that will facilitate. . .	Gay Dolin	Jun 23, 2020	Jul 6, 2020	STU - Test Period/Accepting Comments
1,766	Device Alerting (DEVAL) (Jira PSS- 2005)	Sponsor(s): Devices Work Group Co-Sponsor(s): Clinical Decision Support Work Group; Orders and Observations Work Group; Patient Care Work Group	Medical devices generally support alert annunciation and management, both from a user interface on the device, as well as communicated to a remote system, such as an ICU Central Station. The Device Alerting project addresses how to represent this informat. . .	John Rhoads	Awaiting Approval	Jun 6, 2022	Active Project (Resources assigned to pjt)
1,505	Representation of Clinical Practice Guideline Recommendations in FHIR	Sponsor(s): Clinical Decision Support Work Group Co-Sponsor(s): Clinical Quality Information Work Group; Patient Care Work Group	Over the past year, the U. S. Centers for Disease Control and Prevention (US CDC) has been conducting a multi- stakeholder initiative called 'Adapting Clinical Guidelines for the Digital Age' with the goal of connecting research and evidence swiftly and ac. . .	Bryn Rhodes	Feb 18, 2019	Feb 25, 2019	STU - Test Period/Accepting Comments
1,745	Radiation Therapy Treatment Data (Jira PSS- 1903)	Sponsor(s): Cross-Group Projects Work Group Co-Sponsor(s): Patient Care Work Group	Radiation therapy treatment details – critical for care coordination – are typically available in radiation oncology electronic health record (EHR) modules, commonly recorded as free text notes, and manually entered into radiation therapy (RT) treatment s. . .	Anthony Di Donato	Awaiting Approval	Jan 24, 2022	STU - Test Period/Accepting Comments
1,493	Documentation Templates and Rules (Da Vinci pjt; PSS in Confluence)	Sponsor(s): Clinical Decision Support Work Group Co-Sponsor(s): Patient Care Work Group; Payer/Provider Info Exchange Work Group	See PSS in Confluence for a full description: https://confluence. hl7. org/display/DVP/PSS+ for+ Documentation+ Templates+ and+ Rules?preview=/39160919/40730674/image2019- 1- 9_ 11- 10- 18. png The scope on Confluence describes details of the scope. . . the summary. . .	Robert Dieterle, Kevin Larsen	Mar 16, 2019	Jun 7, 2019	STU - Reconcile
1,915	Person- Centered Outcomes (PCO) FHIR IG (Jira PSS- 2480)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Clinical Interoperability Council Work Group; Human and Social Services Work Group; Patient Empowerment Work Group	The anticipated deliverable will be the HL7 FHIR Person- Centered Outcomes Implementation Guide. The PCO IG will support goal- directed care, such as the person- centered outcomes approach, which includes the identification and tracking of health outcome goa. . .	Dave Carlson	Awaiting Approval	Jan 15, 2025	STU - Balloting
1,929	Profile and Implementation Guide for Advancing Collection of Standardized Symptoms Data (Jira PSS- 2566)	Sponsor(s): Clinical Interoperability Council Work Group Co-Sponsor(s): Clinical Information Modeling Initiative Work Group; Patient Care Work Group; Patient Empowerment Work Group; Public Health Work Group	The anticipated deliverable will be the HL7 FHIR Symptoms Profile and Implementation Guide (IG). The Symptoms IG will support a structured approach to exchanging patient symptoms related data and identify example use cases standardized symptoms data are u. . .	Lisa Anderson	Awaiting Approval	Apr 7, 2025	Active Project (Resources assigned to pjt)
1,541	Vital Signs (PSS in Confluence)	Sponsor(s): Orders and Observations Work Group Co-Sponsor(s): Clinical Information Modeling Initiative Work Group; Orders and Observations Work Group; Patient Care Work Group	The creation of logical models for Vital Signs and their corresponding FHIR profiles and implementation guide.	Stan Huff	Mar 13, 2020	Mar 23, 2020	STU - Test Period/Accepting Comments
1,644	FHIR Implementation Guide for Transfusion and Vaccination Adverse Event Reporting (PSS in Confluence)	Sponsor(s): Biomedical Research and Regulation Work Group Co-Sponsor(s): Patient Care Work Group; Public Health Work Group	The FHIR Implementation Guide provides a set of profiles for detection, validation, reporting, and ultimately recording/persisting Adverse Events associated with blood transfusions and vaccinations. There are two sets of profiles with the first set intend. . .	Jean Duteau	Aug 7, 2020	Aug 31, 2020	STU - Reconcile
1,611	Making Electronic Data More Available for Research and Public Health (Med Morph) Reference Architecture HL7 FHIR Implementation Guide (PSS in Confluence)	Sponsor(s): Public Health Work Group Co-Sponsor(s): Clinical Decision Support Work Group; Clinical Quality Information Work Group; Patient Care Work Group	The goal of the Med Morph project is to develop and pilot a scalable and extensible standards- based reference architecture. This reference architecture will enable clinical data exchange with EHR systems and public health systems, specialized registries, n. . .	Nagesh Bashyam, Brett Marquard	Apr 6, 2020	Apr 13, 2020	STU - Test Period/Accepting Comments
1,573	Specialty Medication Prescribing (PSS in Confluence)	Sponsor(s): Pharmacy Work Group Co-Sponsor(s): Orders and Observations Work Group; Patient Care Work Group	The goal of this project is to create a co- branded FHIR implementation Guide (Co- branded between HL7 and NCPDP) focused on exchange of data (Demographic, prescription, clinical and financial) for dispensing specialty medications by pharmacies as well as f. . .	Melva Peters	Mar 8, 2020	Dec 3, 2021	STU - Test Period/Accepting Comments
1,525	International Patient Summary (IPS) IG (PSS In Confluence)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Electronic Health Records Work Group	The goal of this project is to refine and maintain CDA R2 and FHIR implementation guides and the associated artifacts (e. g. resource profiles) for the International Patient Summary, extending its current scope. This project continues and supersedes . . .	Robert Hausam, MD, Giorgio Cangioli	Apr 7, 2019	Apr 15, 2019	STU - Reconcile
1,567	Gravity Project SDOH Data Elements FHIR IG (PSS in Confluence)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Terminology Infrastructure Work Group	The Gravity Project creates and maintains a consensus- building community to expand available Core Social Determinant of Health (SDOH) Data for Interoperability and accelerate standards- based information exchange by using HL7 FHIR. Gravity Project is part . . .	Lisa Nelson	Oct 22, 2019	Nov 18, 2019	STU - Test Period/Accepting Comments
1,494	Health Record Exchange (HRex) Framework (Da Vinci Pjt; PSS in Confluence)	Sponsor(s): Clinical Interoperability Council Work Group Co-Sponsor(s): Financial Management Work Group; Patient Care Work Group; Payer/Provider Info Exchange Work Group	The Health Record exchange (HRex) Framework is part of the larger Da Vinci use case for Health Record exchange (HRex). After careful evaluation, the HRex project was decomposed into four independent efforts (and tied to 4 separate PSSs). The exchange of . . .	Lloyd Mc Kenzie, Rick Geimer	Mar 16, 2019	Apr 1, 2019	STU - Test Period/Accepting Comments
1,370	Transplant, Transfusion, and Grafts on FHIR	Sponsor(s): Orders and Observations Work Group Co-Sponsor(s): Patient Care Work Group; Pharmacy Work Group	The objective of the project is to create an Implementation Guide to support data access, exchange about grafts, infusions and/or transplantation of biological derived products such as hematopoietic stem cells (bone marrow, peripheral blood, or cord blood. . .	Bob Milius	Nov 3, 2017	Nov 13, 2017	On Hold
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