Patient Care

Projects

Child Health (Archived)

Below is a list of the current projects this work group is sponsoring. Visit the searchable project database to find projects sponsored by other work groups.

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Num	Name	Sponsor(s)/ Co-Sponsor(s)	Description	Project Facilitator	SD Approval Date	TSC Approval Date	Status
1,620	COVID 19 FHIR IG (PSS in Confluence)	Sponsor(s): Clinical Information Modeling Initiative Work Group Co-Sponsor(s): Clinical Quality Information Work Group; Orders and Observations Work Group; Patient Care Work Group; Public Health Work Group	Develop or reference FHIR profiles for COVID 19 data that requires exchange using standards. This will be a library of reusable profiles that can be used for multiple use cases including case reporting, surveillance, orders, analytics, research, etc. I. . .	Stan Huff	Aug 7, 2020	Nov 23, 2020	Informative - Request Publication
1,652	PACIO: Advance Directives Interoperability (in FHIR) (PSS in Confluence)	Sponsor(s): Patient Empowerment Work Group Co-Sponsor(s): Community-Based Care and Privacy (CBCP) Work Group; Orders and Observations Work Group; Patient Care Work Group	This project will create FHIR implementation IG(s) for Advance Directives Interoperability (ADI). It is a complex area that involves many stakeholders. The Post- Acute Care Interoperability (PACIO) Community has a strong interest in the topic of advance. . .	Maria D. Moen	Dec 15, 2020	Dec 21, 2020	STU - Test Period/Accepting Comments
1,691	PACIO FHIR Profile - Re- assessment Timepoint (Jira PSS- 1712)	Sponsor(s): Community-Based Care and Privacy (CBCP) Work Group Co-Sponsor(s): Patient Care Work Group	This project goal is to profile the encounter and/or the episode of care resource to create definition for sub- periods of time within an extended post- acute admission. Since Post- Acute admissions can extend weeks, months, and years the 'Re- assessment Time. . .	Chris Pugliese	Apr 16, 2021	Apr 26, 2021	STU - Test Period/Accepting Comments
1,699	Care Team Domain Analysis Model Version 2 (PSS in Confluence)	Sponsor(s): Learning Health Systems Work Group Co-Sponsor(s): Clinical Information Modeling Initiative Work Group; Patient Care Work Group; Public Health Work Group	This project will construct a domain analysis model (DAM)of the patient centered care team unique for an individual including health professionals, caregivers in healthcare organizations, family members, community caregivers, clinical investigators and ot. . .	Russell Leftwich	Aug 20, 2021	Aug 20, 2021	Informative - Reconcile
1,520	Consolidated CDA STU 2019 Update (Jira PSS- 1834)	Sponsor(s): Structured Documents Work Group Co-Sponsor(s): Patient Care Work Group; Payer/Provider Info Exchange Work Group	This project will migrate the C- CDA R2. 1 templates supporting proposed USCDI v1 to a new web publication framework. In Scope: As part of the migration, the following will be included: - Document Header templates: - US Realm Header and US Realm . . .	Lisa Nelson, Brett Marquard? (Sean Mc Ilvena or Rick Geimer) for dependent tooling work)	Mar 27, 2019	Sep 17, 2021	Active Project (Resources assigned to pjt)
1,731	PACIO Project: Speech, Language, Swallowing, Cognitive Communication, and Hearing (SPLASCH) (PSS in Confluence)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Community-Based Care and Privacy (CBCP) Work Group	This project will identify the data elements regarding eating, swallowing, and functional communication that need to be captured and exchanged across transitions of care in health care settings, based on the International Classification of Functioning, Di. . .	Jamila Harley	Awaiting Approval	Oct 18, 2021	STU - Test Period/Accepting Comments
1,573	Specialty Medication Prescribing (PSS in Confluence)	Sponsor(s): Pharmacy Work Group Co-Sponsor(s): Orders and Observations Work Group; Patient Care Work Group	The goal of this project is to create a co- branded FHIR implementation Guide (Co- branded between HL7 and NCPDP) focused on exchange of data (Demographic, prescription, clinical and financial) for dispensing specialty medications by pharmacies as well as f. . .	Melva Peters	Mar 8, 2020	Dec 3, 2021	STU - Test Period/Accepting Comments
1,722	International Patient Access (Jira PSS- 1808)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Cross-Group Projects Work Group; Patient Empowerment Work Group	This International Patient Access specification describes how to access patient records anywhere in the world. It provides a very minimal set of access methods and rules about the content that are true everywhere. Working healthcare systems need additiona. . .	Isaac Vetter	Awaiting Approval	Dec 6, 2021	STU - Test Period/Accepting Comments
1,745	Radiation Therapy Treatment Data (Jira PSS- 1903)	Sponsor(s): Cross-Group Projects Work Group Co-Sponsor(s): Patient Care Work Group	Radiation therapy treatment details – critical for care coordination – are typically available in radiation oncology electronic health record (EHR) modules, commonly recorded as free text notes, and manually entered into radiation therapy (RT) treatment s. . .	Anthony Di Donato	Awaiting Approval	Jan 24, 2022	STU - Test Period/Accepting Comments
1,746	CHOICE Guideline for the use of a Fetal Resource (Jira PSS- 1946)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Public Health Work Group	Goal of the project is provide guidance in handling data relevant to the foetus in order to facilitate making those data available at the time of birth. Ultrasonographic and other imaging findings, pertinent genetic and labor. A foetus starts as a body ti. . .	Michael Tan	Awaiting Approval	Jun 6, 2022	Informative - Reconcile
1,766	Device Alerting (DEVAL) (Jira PSS- 2005)	Sponsor(s): Devices Work Group Co-Sponsor(s): Clinical Decision Support Work Group; Orders and Observations Work Group; Patient Care Work Group	Medical devices generally support alert annunciation and management, both from a user interface on the device, as well as communicated to a remote system, such as an ICU Central Station. The Device Alerting project addresses how to represent this informat. . .	John Rhoads	Awaiting Approval	Jun 6, 2022	Active Project (Resources assigned to pjt)
1,770	Physical Activity Implementation Guide (Jira PSS- 2091)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Clinical Interoperability Council Work Group	This project will create and encourage the adoption of a FHIR implementation guide that standardizes: - the capture of information about a patient's physical activity level - specifically the LOINC exercise vital sign (https://loinc. org/89574- 8/) . . .	Lloyd Mc Kenzie	Awaiting Approval	Jun 27, 2022	STU - Test Period/Accepting Comments
1,805	Adverse Event Clinical Research Implementation Guide (Jira PSS - 2171)	Sponsor(s): Biomedical Research and Regulation Work Group Co-Sponsor(s): Devices Work Group; Patient Care Work Group	Adverse events (AE) are tracked and evaluated as part of the clinical research process in a research study, as the occurrence of an adverse event may surface a potential confounder or a potential side- effect of the study treatment. In the research setting. . .	Michelle Casagni	Awaiting Approval	Apr 24, 2023	STU - Test Period/Accepting Comments
1,876	PACIO Transitions of Care for Post- Acute Providers (Jira PSS- 2311)	Sponsor(s): Patient Care Work Group	The purpose of the LTPAC Transitions of Care (TOC) Implementation Guide is to provide a standards- based solution to support care transitions and coordination for LTPAC patients across all settings of care. The five traditional Post- Acute Care (PAC) settin. . .	David Hill	Awaiting Approval	Apr 2, 2024	STU - Test Period/Accepting Comments
1,915	Person- Centered Outcomes (PCO) FHIR IG (Jira PSS- 2480)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Clinical Interoperability Council Work Group; Human and Social Services Work Group; Patient Empowerment Work Group	The anticipated deliverable will be the HL7 FHIR Person- Centered Outcomes Implementation Guide. The PCO IG will support goal- directed care, such as the person- centered outcomes approach, which includes the identification and tracking of health outcome goa. . .	Dave Carlson	Awaiting Approval	Jan 15, 2025	STU - Balloting
1,929	Profile and Implementation Guide for Advancing Collection of Standardized Symptoms Data (Jira PSS- 2566)	Sponsor(s): Clinical Interoperability Council Work Group Co-Sponsor(s): Clinical Information Modeling Initiative Work Group; Patient Care Work Group; Patient Empowerment Work Group; Public Health Work Group	The anticipated deliverable will be the HL7 FHIR Symptoms Profile and Implementation Guide (IG). The Symptoms IG will support a structured approach to exchanging patient symptoms related data and identify example use cases standardized symptoms data are u. . .	Lisa Anderson	Awaiting Approval	Apr 7, 2025	Active Project (Resources assigned to pjt)
1,429	FHIR Implementation Guide for Data Exchange for Quality Measures (Da Vinci Pjt)	Sponsor(s): Clinical Quality Information Work Group Co-Sponsor(s): Clinical Decision Support Work Group,Patient Care Work Group	- Payers and providers need common exchange process to share the data required to complete quality measures as well as gaps in care. - The initial focus of this PSS was both the standard for exchange and the specific use case of medication reconcilia. . .	Bryn Rhodes, Gay Dolin, Robert Dieterle, Linda Michaelsen, Viet Nguyen	Mar 2, 2020	Jan 30, 2026	STU - Reconcile
1,977	Da Vinci Data Exchange for Quality Measures DEQM Universal Realm (PSS- 2691)	Sponsor(s): Clinical Quality Information Work Group Co-Sponsor(s): Clinical Decision Support Work Group,Patient Care Work Group	Note that this is a new JIRA PSS to the existing project, PI ID 1429. The purpose of this change is to create a Universal Realm successor to the DEQM STU 5 IG already published in the US Realm. DEQM STU 5. 0. 0 is published in the US Realm, and th. . .	Bryn Rhodes	Awaiting Approval	Jan 30, 2026	Active Project (Resources assigned to pjt)
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