Patient Empowerment

Projects

Below is a list of the current projects this work group is sponsoring. Visit the searchable project database to find projects sponsored by other work groups.

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Num	Name	Sponsor(s)/ Co-Sponsor(s)	Description	Project Facilitator	SD Approval Date	TSC Approval Date	Status
1,984	Standardization of Patient- Generated Health Data Recorded on Smartphones (PSS- 2560)	Sponsor(s): Arden Syntax Work Group Co-Sponsor(s): Patient Empowerment Work Group	The project aims to develop the Patient- Generated Health Data Implementation Guide for health data collected via Apple Health Kit and Google Health Connect. This guide will provide standardized data structure and code for capturing data in Apple Health Kit. . .		Awaiting Approval	Awaiting Approval	Active Project (Resources assigned to pjt)
1,804	Standard Personal Health Record (Jira- PSS 2125)	Sponsor(s): Patient Empowerment Work Group Co-Sponsor(s): Electronic Health Records Work Group; FHIR Infrastructure Work Group	This FHIR Implementation Guide operationalizes the PHR- S Functional Model providing best practice guidance for FHIR Apps based on the PHR- S functional model, a FHIR- based file format to support PHR data portability, and provides patient app developers wit. . .	Abigail Watson	Awaiting Approval	May 16, 2023	STU - Balloting
1,929	Profile and Implementation Guide for Advancing Collection of Standardized Symptoms Data (Jira PSS- 2566)	Sponsor(s): Clinical Interoperability Council Work Group Co-Sponsor(s): Clinical Information Modeling Initiative Work Group; Patient Care Work Group; Patient Empowerment Work Group; Public Health Work Group	The anticipated deliverable will be the HL7 FHIR Symptoms Profile and Implementation Guide (IG). The Symptoms IG will support a structured approach to exchanging patient symptoms related data and identify example use cases standardized symptoms data are u. . .	Lisa Anderson	Awaiting Approval	Apr 7, 2025	Active Project (Resources assigned to pjt)
1,728	Problem Oriented Health Record (POHR) (Jira PSS- 2684)	Sponsor(s): Electronic Health Records Work Group Co-Sponsor(s): Patient Empowerment Work Group	Updated 2026 Description: The Problem- Oriented Health Record (POHR) Project was established by the EHR WG as a Functional Profile (FP) within the existing ISO/HL7 10781 EHR System Functional Model (EHR- S FM). See Release 2. 1. 1, 2025. The portions of . . .	Lincoln Weed	Awaiting Approval	Oct 18, 2021	Active Project (Resources assigned to pjt)
1,846	Personalized Health Navigation (Jira PSS- 2240)	Sponsor(s): Patient Empowerment Work Group Co-Sponsor(s): Devices Work Group; Mobile Health Work Group; Orchestration, Services, and Architecture Work Group	Personalized Health Navigation (PHN) utilizes intelligent navigational technologies to enable and empower individuals to intentionally pursue their own health and wellness journey. It includes integrating comprehensive information from an individual's da. . .	Todd Cooper	Awaiting Approval	Nov 14, 2023	Active Project (Resources assigned to pjt)
1,915	Person- Centered Outcomes (PCO) FHIR IG (Jira PSS- 2480)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Clinical Interoperability Council Work Group; Human and Social Services Work Group; Patient Empowerment Work Group	The anticipated deliverable will be the HL7 FHIR Person- Centered Outcomes Implementation Guide. The PCO IG will support goal- directed care, such as the person- centered outcomes approach, which includes the identification and tracking of health outcome goa. . .	Dave Carlson	Awaiting Approval	Jan 15, 2025	STU - Balloting
1,645	Patient Request for Corrections FHIR Implementation Guide Project (PSS in Confluence)	Sponsor(s): Patient Empowerment Work Group	The purpose of this project is to build a FHIR Implementation Guide to provide a standard way to communicate information required to support a patient request for corrections workflow.	Debi Willis	Awaiting Approval	Feb 7, 2022	Active Project (Resources assigned to pjt)
1,652	PACIO: Advance Directives Interoperability (in FHIR) (PSS in Confluence)	Sponsor(s): Patient Empowerment Work Group Co-Sponsor(s): Community-Based Care and Privacy (CBCP) Work Group; Orders and Observations Work Group; Patient Care Work Group	This project will create FHIR implementation IG(s) for Advance Directives Interoperability (ADI). It is a complex area that involves many stakeholders. The Post- Acute Care Interoperability (PACIO) Community has a strong interest in the topic of advance. . .	Maria D. Moen	Dec 15, 2020	Dec 21, 2020	STU - Test Period/Accepting Comments
1,722	International Patient Access (Jira PSS- 1808)	Sponsor(s): Patient Care Work Group Co-Sponsor(s): Cross-Group Projects Work Group; Patient Empowerment Work Group	This International Patient Access specification describes how to access patient records anywhere in the world. It provides a very minimal set of access methods and rules about the content that are true everywhere. Working healthcare systems need additiona. . .	Isaac Vetter	Awaiting Approval	Dec 6, 2021	STU - Test Period/Accepting Comments
1,939	Combine CDA Templates for Personal ACP and POLST document types into a single CDA IG in SD Format (Jira PSS- 2657)	Sponsor(s): Patient Empowerment Work Group Co-Sponsor(s): Community-Based Care and Privacy (CBCP) Work Group; Orders and Observations Work Group; Patient Care Work Group; Structured Documents Work Group	The project will create a CDA Implementation Guide (IG) in Structure Definition (SD) Format using HL7 IG Publisher. The focus of the IG will be a combined set of CDA document, section, and entry templates which evolve the current CDA templates toward desig. . .	Maria D. Moen	Awaiting Approval	Awaiting Approval	Active Project (Resources assigned to pjt)
1,942	APIX - API Exchange for Medicinal Products (Jira PSS- 2675)	Sponsor(s): Biomedical Research and Regulation Work Group Co-Sponsor(s): Patient Empowerment Work Group	This FHIR IG will define a global standard for real- time, API- based exchange of medicinal product information. The guide promotes the use of a common international exchange framework that is modern and offers lightweight interoperability across organizati. . .	Filippo Napoli	Awaiting Approval	Nov 10, 2025	Active Project (Resources assigned to pjt)
1,851	Anatomical Inventory and Person Characteristics (Jira PSS- 2280)	Sponsor(s): Orders and Observations Work Group Co-Sponsor(s): Patient Empowerment Work Group; Public Health Work Group	Develop a FHIR profile(s) to address the exchange of common, clinically relevant and infrequently changing person characteristics that could be represented in a standardized manner. This may include anatomical inventory, blood type and antigens, eye color. . .	Kelly Davison	Awaiting Approval	May 28, 2024	Informative - Reconcile
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