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Section 1h: Cross-paradigm/Domain Analysis Models
Section 2: Clinical and Administrative Domains

HL7 Informative Document: Patient Contributed Data, Edition 1

DESCRIPTION

This white paper explores and defines Patient Contributed Data (PCD). It looks at barriers to effective use of this data and recommends strategies for overcoming the barriers as well as ways to integrate this data for clinical use. Seven patient journeys illustrating aspects of PCD are explored in detail. The goal is to raise awareness and build strategies for additional standards and approaches to make this data more available and accessible.

ALTERNATIVE NAMES

HL7 Informative Document: Patient Contributed Data, Edition 1 may also go by the following names or acronyms:

"Hl7 Patient Contributed Data, R1",PCD, PGHD

BENEFITS

The benefits of adding standards for PCD and engaging patients in its collection and examination include: 

  • More collaboration between patients and doctors
  • Better understanding of the space between encounters with the healthcare system
  • More educated and empowered patients
  • Consistent standards across a range of data collection tools, including consumer-grade tools

RELATED DOCUMENTS

HL7 Informative Document: Patient Contributed Data, Edition 1

(Download)

TOPICS

  • Care Provision
  • Community-Based Health
  • Healthcare Devices
  • Patient Administration
  • Patient Care
  • Security and Privacy

BALLOT TYPE

  • Informative

STATUS DATE

2023-11-16

RESPONSIBLE WORK GROUP

Patient Empowerment

PRODUCT TYPE

  • White Paper

STAKEHOLDERS

  • EHR, PHR Vendors
  • Equipment Vendors
  • Health Care IT Vendors
  • Regulatory Agency
  • Standards Development Organizations (SDOs)

FAMILY

  • Cross-paradigm

CURRENT STATE

  • Active

REALM

  • Universal