Essential Information for Children with Special Health Care Needs

Children commonly have specific needs requiring multidisciplinary care and communication. We aim to develop required templates and implementation guide for an electronic format (e.g., CDA) that includes important information about patient (and, when appropriate, parental) preferences and directives when seeking care from health care providers in a variety of settings including urgent or emergent care. We will identify information requirements from existing examples of emergency information forms and personal health records for children with special healthcare needs. Subject matter areas may include relevant procedures to avoid (e.g., vascular access), communication, behaviour, and contingency-based plans. We will perform analysis against existing standards to identify gaps Naming of this document is included in scope. Advance directives will not be included scope.