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International Patient Access (Jira PSS-1808)

Basics

International Patient Access (Jira PSS-1808)

1722
Ballot - STU to Normative




Details

This International Patient Access specification describes how to access patient records anywhere in the world. It provides a very minimal set of access methods and rules about the content that are true everywhere. Working healthcare systems need additional rules about the access API to meet other use cases, and make many additional rules about the content based on national laws, regulations and accepted practice in order to support the provision of health in their healthcare system.

This project will look to the US Core FHIR profiles for inspiration and the work done by the IPS project for compatibility. As part of this PSS, we will create a FHIR Implementation Guide containing guidance and profiles to support the exchange of data elements. For a complete list, see the PSS in Jira.


International Patient Access (IPA) defines a minimal, base set of FHIR profiles specifically intended to be used as-is, or built on top of by countries looking to enable patient access and patient-facing apps accessing data via FHIR. The emphasis and scope of this project is the exchange of health data for enabling patient access. The IG and project will do minimal content profiling.

Improving patients' access to their medical data is a goal shared across national boundaries; yet, the technical mechanism to do so is not. Country-specific standards and even FHIR profiles are widespread. Without a project like IPA, each country or region is responsible for defining FHIR profiles for patient access from scratch.



Updated Target Dates: Ballot in Jan 2025 Publish in Sept 2026. Partial Normative ballot in May 2026 Publish partially normative ballot in Jan 2027 HL7 FHIR Connectathon track - Target: January, 2022 FHIR Connectathon Create new R1 of a FHIR IG - Target: Ballot STU in May 2022 cycle


PSS: https://jira.hl7.org/browse/PSS-1808 https://github.com/HL7/fhir-ipa

The 'IHE QEDm' (Query for Existing Data for mobile) profile may contain existing content from which this HL7 project should draw upon.

This project is specifically intended to draw from the success of US Core and will heavily rely upon existing US Core content. Additionally, we will look for additional national, and widely adopted patient access profiles for consistency. For example: - https://www.kanta.fi/en/system-developers/kanta-phr - https://informatiestandaarden.nictiz.nl/wiki/MedMij:V2020.01/Ontwerpen


TBD

Global movements towards increased patient access to their health data, including federal legislation, regulation and cultural shifts across a broad range of jurisdictions and countries. Attempts by multi-national apps and FHIR servers to provide services in common across federal boundaries.

International Patient Access; IPA


Yes


No

2025 March: TSC approved STU Extension Request for HL7 FHIR Implementation Guide: International Patient Access (IPA), Release 1 for 2 years 2025 January: TSC approved Unballoted STU Update Publication Request for HL7 FHIR Implementation Guide: International Patient Access (IPA), Release 1.1 2024 January: JLyle, IVetter: Provided PMO updated target dates. 2023 February: TSC approved STU Publication Request for HL7 FHIR Implementation Guide: International Patient Access (IPA), Release 1 for two years Stakeholders: Academic/Research, Association/Goverment Agency, Consultant, Healthcare IT Vendors, Healthcare Provider/user, Other, Patients, Pharmaceutical/Biotech, Providers, Regulatory Agency, Standards Development Organizations (SDOs), Vendor/Manufacturer Other Stakeholders: Specifically, national regulatory and legislative bodies and multi-national app and FHIR server developers are relevant audiences and stakeholders for this project.
Organization & Realm


People

Isaac Vetter



Patient Care Work Group

Cross-Group Projects Work Group; Patient Empowerment Work Group

Status & Dates

Active

STU - Test Period/Accepting Comments

11/04/2021

05/01/2027

2027 May WGM/Ballot

05/01/2027

2027 May WGM/Ballot

2022 Jan Ballot Cycle Info: STU Ballot results: Met basic vote requirements. 23 Negatives to reconcile Document Name: HL7 FHIR Implementation Guide: International Patient Access (IPA), Release 1 (See Jira Ballot Dashboard)
Approvals

12/06/2021


Not Needed


Not Needed




FHIR Management Group -- Agreed -- (PSS-1896)
System Info

161680

PSS-1808



02/02/2026

Jira Project Service