×

To enhance security, Multi-Factor Authentication (MFA) is mandatory for all HL7 users. More information

 

CHOICE Guideline for the use of a Fetal Resource (Jira PSS-1946)

Basics

CHOICE Guideline for the use of a Fetal Resource (Jira PSS-1946)

1746
Ballot - Informative


White Paper

White Paper (Balloted Informative)

Details

Goal of the project is provide guidance in handling data relevant to the foetus in order to facilitate making those data available at the time of birth. Ultrasonographic and other imaging findings, pertinent genetic and labor. A foetus starts as a body tissue of the mother, but at some point during gestation it becomes apparent, that the foetus could be considered more as a "individual" entity to which you would like to link procedures and observations to. This projects is meant to reach an universal consensus in the handling of this data. Questions to be answered in the project are:

In which cases do we consider to use foetus as a seperate resource?

- Which algorithms of identification of the foetus do we consider?

- Which type of procedures for a foetus do we consider in scope?

- What is the impact for procedures and medication if it is specifically meant for the foetus and not the mother?

- Which data do we relate to the foetus ( instead of the mother)?

- Which kind of data do we need for research, surveillance of birth defects and vital statistics?

Legal questions are not in scope of the project. The project covers the flow of exceptional treatments as well as normal pregnancy until data transfer to youth health care.


Information relevant to fetus is currently handled in different ways. A foetus is not considered as a patient, some use body-site of the mother as an alternative, but this has drawbacks. Part of the project is to consider a simplified resource of a patient, which could evolve into a real patient, once the child is born. The project need is fo find a universal understanding and consensus in the process during gestation and the methods of handling the information related to the fetus. This would make comparison and research in vital statistics much easier between the different countries. Procedures for a foetus would be more straight forward and transformation of foetal data into a patient would be more transparant.



White paper - Ballot informative - Target: Jan 2023 Ballot Cycle


https://confluence.hl7.org/pages/viewpage.action?pageId=86973863 PSS: https://jira.hl7.org/browse/PSS-1946



Clinical and Public Health Laboratories; Healthcare Institutions (hospitals, long term care, home care, mental health),EHR, PHR; Health Care IT

Children's Hospital of Philadelphia

Babyconnect ( NL),

Child Health Obstetrics International Collaboration & Exploration




No

2022 June: Updated PSS submitted
Organization & Realm

Universal

People

Michael Tan



Patient Care Work Group

Public Health Work Group

Status & Dates

Active

Informative - Reconcile

12/15/2021

09/01/2025

2025 Sept WGM/Ballot

05/01/2025

2025 May WGM/Ballot

2024 Sept Ballot Cycle Info: INFORMATIVE Ballot results: Met basic vote requirements. 7 Negatives to reconcile Document Name: HL7 FHIR Implementation Guide: International Birth and Child Model, Release 1 2023 Sept Ballot Cycle Info: INFORMATIVE Ballot Results: Did not meet basic vote requirements. 24 Negatives to reconcile Document Name: HL7 FHIR Implementation Guide: International Birth and Child Model, Release 1
Approvals

06/06/2022


Not Needed


All Received




FHIR Management Group -- Agreed -- (PSS-1996)
System Info

181674

PSS-1946



02/02/2026

Jira Project Service