Personalized Health Navigation (Jira PSS-2240)

Personalized Health Navigation (PHN) utilizes intelligent navigational technologies to enable and empower individuals to intentionally pursue their own health and wellness journey. It includes integrating comprehensive information from an individual's daily life, factoring in all relevant knowledge sources (e.g., omics, exposome, etc.), to personalize, optimize and guide their self-directed health, wellness, and healthcare activities. It includes facilitating coordination with a person's family, community, caregivers and healthcare team, so as to attain their desired goals.

PHN includes extensive real-time digital data collection (both health, environmental & other sources), integration, filtering, and persisting into a personal chronicle (or 'Personicle') that can be used for event mining, leveraged by a personal model that also integrates additional information & knowledge sources (e.g., omics or exposome). This personal model then provides the basis for navigational guidance toward a person's goals, from training to run a marathon in 3 months to better living with chronic conditions such as diabetes.

PHN supports what has variously been termed '5P' / '9P' medicine - personalized, preventive, predictive, participative, precision + pervasive, privacy-preserving, protective, priced reasonably. (See Bernd Blobel publications, 'Managing Healthcare Transformation Towards P5 Medicine' 2022; or Ram Sriram 'Transforming Healthcare Through Digital Revolutions' 2020).

This project will begin with the development of an HL7 paper that describes PHN in detail, identifies how it can integrate existing HL7 and related standards and working group efforts, and the implementation specification gaps that need to be filled in order to achieve the overall goals of personalized health navigation systems described above.

An initial PHN FHIR Implementation Guide is anticipated to cover the core elements of PHN; however, given the breath of the topic, a number of other FHIR IG's may be subsequently created.

This project will be in collaboration with ISO/TC215 Health Informatics and the ISO 9472 PHN family of specifications. ISO would provide the conceptual foundational home for PHN; whereas, HL7 would provide the implementation community, including implementation guides and prototyping / testing events.

See PHN materials (presentations, papers) and other materials on the [HL7 Personalized Health Navigation confluence pages|https://confluence.hl7.org/pages/viewpage.action?pageId=171443414.]